In Honor of Rare Disease Week 2025, Petition Amplifies Capitol Hill Ask
WASHINGTON, March 5, 2025 /PRNewswire/ -- More than 10,000 rare disease advocates signed a petition led by the EveryLife Foundation for Rare Diseases (EveryLife Foundation) urging Members of Congress to encourage the President and the Secretary of Health and Human Services to support steady and robust federal agency leadership, federal biomedical research funding, and public health agency...