United Porphyrias Aims to Raise Awareness, Research and Support for Rare Disease
BETHESDA, Md., May 17, 2024 /PRNewswire/ -- United Porphyrias Association (UPA) is proud to announce May 18 as Global Porphyria Day. Global Porphyria Day is intended to create awareness that prompts action for improved healthcare, increased research, and enhanced support for individuals with porphyria. The campaign encourages wearing and promoting the color purple, the color of...